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Post by pieter on Aug 16, 2023 8:51:30 GMT -7
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Post by pieter on Aug 16, 2023 8:57:29 GMT -7
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Post by pieter on Aug 16, 2023 9:07:08 GMT -7
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Post by pieter on Aug 16, 2023 9:15:55 GMT -7
[Chorus]
Sometimes I am a fighter
Couldn't be worse
Do you see my scarier side
Sometimes I am a warrior
Will the weather be nicer
Not much going on
I still have a lot to learn
And accept
That there is no other way
I am a fighter
I am a warrior
[Verse]
Do you know that feeling?
That no one listens to you
I know what you mean
Sometimes you don't trust anyone
Are you sometimes sad?
And do you think no one sees it
Then don't forget the power of yourself
[Chorus]
Sometimes I am a fighter
Couldn't be worse
Do you see my scarier side
Sometimes I am a warrior
Will the weather be nicer
Not much going on
I still have a lot to learn
And accept
That there is no other way
I am a fighter
I am a warrior
Warrior, warrior, warrior
I am a fighter, I am a warrior
[Bridge]
Whatever you do
Always keep the courage
Because then everything will be all right again
And you are really not alone
[Chorus]
Sometimes I am a fighter
Couldn't be worse
Do you see my scarier side
Sometimes I am a warrior
Will the weather be nicer
Not much going on
I still have a lot to learn
And accept
That there is no other way
I am a fighter
I am a warrior
Warrior, warrior, warrior
Warrior, warrior, warrior
Warrior, warrior, warrior
I am a fighter, I am a warrior
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Post by pieter on Aug 16, 2023 9:21:14 GMT -7
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Post by pieter on Aug 16, 2023 9:25:47 GMT -7
[Lyrics to "Let Me Be A Butterfly"]
[Verse 1]
If I could change for a day
Then it seems very nice to me
Just like so many others
Don't be afraid for once, but be free
If I could do anything for a while
Then I quickly crawled out of my cocoon
Flew through the clouds to the sun
[Chorus]
Being able to move freely
Live without fear and worry
Let me be a butterfly
Let me be a butterfly
Never having to wear a mask
With my wings spread
Let me be a butterfly
Let me be a butterfly
[Verse 2]
I thought I was losing
But I rose and conquered
And only found out through the fighting
How much I actually could
But there are times sometimes
Then I really want more than I can
And I always dream of
[Chorus]
Being able to move freely
Live without fear and worry
Let me be a butterfly
Let me be a butterfly
Never having to wear a mask
With my wings spread
Let me be a butterfly
Let me be a butterfly
[Bridge]
Na-na, na-na-na-na-na
Na-na, na-na-na-na-na
Na-na, na-na-na-na-na-na
If only today
Or even just for a count of ten
I'll just love to
Seeing the world as another
Let me be a butterfly
Let me be a butterfly
[Chorus]
Being able to move freely
Live without fear and worry
Let me be a butterfly
Let me be a butterfly
Never having to wear a mask
With my wings spread
Let me be a butterfly
Let me be a butterfly
[outro]
Na-na, na-na-na-na-na (Oh)
Na-na, na-na-na-na-na (Ooh, yeah)
Na-na, na-na-na-na-na-na
Let me be a butterfly
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Post by pieter on Aug 16, 2023 9:29:00 GMT -7
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Post by pieter on Aug 16, 2023 9:33:34 GMT -7
Emma Kok is very little due to her disease. Here she sings with a Dutch Childrens choir.Emma Kok was heavily bullied when she was little due to her handicap, and that made her primary school education period difficult.
She had difficulties in trusting people, but has an increbible will power in her singing. She tours with Adré Rieu and his Schubert Orchestra.
Emma Kok suffers from Gastroparesis (gastro- from Ancient Greek γαστήρ – gaster, "stomach"; and -paresis, πάρεσις – "partial paralysis"), also called delayed gastric emptying, a medical disorder consisting of weak muscular contractions (peristalsis) of the stomach, resulting in food and liquid remaining in the stomach for a prolonged period of time. Stomach contents thus exit more slowly into the duodenum of the digestive tract. This can result in irregular absorption of nutrients, inadequate nutrition, and poor glycemic control.
Symptoms include nausea, vomiting, abdominal pain, feeling full soon after beginning to eat (early satiety), abdominal bloating, and heartburn. The most common known mechanism is autonomic neuropathy of the nerve which innervates the stomach: the vagus nerve. Uncontrolled diabetes mellitus is a major cause of this nerve damage; other causes include post-infectious and trauma to the vagus nerve.
Diagnosis is via one or more of the following: barium swallow X-ray, barium beefsteak meal, radioisotope gastric-emptying scan, gastric manometry, esophagogastroduodenoscopy (EGD), and a stable isotope breath test. Complications include malnutrition, fatigue, weight loss, vitamin deficiencies, intestinal obstruction due to bezoars, and small intestine bacterial overgrowth. Patient nutritional state should be managed by oral dietary modification, or if oral intake is not adequate through a jejunostomy feeding tube.
Treatment includes dietary modifications, medications to stimulate gastric emptying, medications to reduce vomiting, and surgical approaches.
Additionally, gastric electrical stimulation (GES; approved on a humanitarian device exemption) can be used as treatment.
Overall survival in gastroparesis patients is significantly lower than survival in the general population. It is associated with poor outcomes.Watch in 1:00, she explains her disease in Dutch, and she carries her Feeding tube in a rucksack, with tubes attached to her abdomen. The images tell the story.This video is from the Dutch Youth Journal (Jeugdjournaal) for children and young teenagers.
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Post by karl on Aug 16, 2023 14:51:12 GMT -7
Pieter
A very moving and sensitive video story of Emma Kok, one to catch the heart strings of most any person. In spite of her medical condition and her youth, she carries on as a little trooper. An inspiration to most that medical issues is one thing, but the internal spirit is another.
Karl
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